About Jay

Life was going good you could say I was a truck driver working long hours, had a beautiful family and had just finished renovating our house.
I had this mole on my ankle that was there my whole life, but half way through 2007 it began to get itchy, scab up every now and then and would bleed. I thought nothing of it, I wore work boots to work and just thought it was them rubbing against it. After much persistence from my wife in January 2008 I finally went to the doctor and had it checked, the doctor took one look at it and said that’s got to come out.
A few days later I received news that the mole was a melanoma 1.95mm deep.
Our thoughts were, ok it’s not good news but we will be right, get it cut out and get on with it. I had no idea what I was in for or just how serious melanoma is.
Fast forward a couple of months and this melanoma that was on my ankle had turned into a life threatening situation. I had two major operations, a bout of chemotherapy and now have to have check ups every 3 months, which include chest X-rays and blood tests for 5 years.
The melanoma had spread to one lymph node in my groin. I was diagnosed with stage 3 melanoma. I had no idea that a mole on your body can turn into something so deadly. A melanoma only needs to get 1 mm deep and can get into your blood stream or lymphatic system and spread to other parts of your body.
Melanoma is the most serious form of skin cancer. Alarmingly, Australia has the highest incidence of melanoma in the world and it is often referred to as “Australia’s cancer” Melanoma is the third most common form of cancer in Australian men and women and is the most common of all cancers in individuals aged 15-39. Each year in Australia melanoma is responsible for 1200 deaths and 10,000 new cases are diagnosed annually.
Before my diagnosis I was a frequent indoor tanning user, my surgeon is adamant that this contributed to my disease so I have been advocating since December 2008 to increase public knowledge of the inherent risks associated with sun-bed use. I also would like people to be more sun -smart and get regular skin check ups. Early prevention is the key, melanoma is almost 90% curable if caught early.
I have just reached a major milestone in my cancer journey, 3 years cancer free. My diagnosis has been life changing I no longer drive trucks and am now working for Melanoma Institute Australia. I also facilitate melanoma support groups through out NSW.
Melanoma Institute Australia aims to be a global leader in the research, treatment and prevention of melanoma. The Institute is dedicated to minimising the devastating impact of melanoma on the community and is working to ultimately find a cure for melanoma.
If there is one message I can give it would be to check your skin regularly. Particularly any moles that increase in size, Change in colour, Change in shape/irregular border, Itch or bleeding or anything on your skin that doesn’t look right.
If you have any of these warning signs get your skin checked by your doctor.
Melanoma is not always just a bit of skin cancer that gets cut out, it can be quite invasive and can kill you.
It happened to me and it can happen to you too.
Melanoma is Deadly serious.

Sunbedban Campaign

I’ve been asked numerous times: why are you taking on the battle of telling the world what dangers lie under the rays of this silent killer? If I don’t bring the information I’ve learned the hard way to the surface, then who will?

There is no place for sunbeds in a society that takes cancer prevention seriously.

I now facilitate support groups throughout NSW for melanoma patients, families and friends.  My main motivation is to give back and stop people feeling so alone during their cancer journey.  I don’t want anyone else to feel how I did if I can help it. When diagnosed with melanoma, you need support and, most importantly, you need to know people survive it. It’s such a scary time in your life without support.

Why go on a road trip to America some might ask? Well, over the last couple of years I have become friends with other melanoma survivors around the world through Facebook, in particular a few in the US who have really touched my heart. Like Jill and Eric Robbins Sizemore. Two years ago Jill got in touch with me because her husband Eric had just been diagnosed with stage 3 melanoma and our diagnoses were very similar. We have kept in contact ever since and over the last year Eric has been fighting an especially hard battle. His bravery and toughness has been inspirational. I feel it makes sense to want to meet this courageous family in person. Or there is Miranda Mcgill, Katie Brennan, Bob Heffernan the list goes on. Hopefully by us fellow survivors all coming together we can give each other support.

I think that would be a great thing!

No tan is worth dying for!

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1 comment

  1. jayallen

    Thank you! :)

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